One of the hardest things about navigating my illness—and the recovery process—was learning how to wiggle my way out of my relationship with efforting.

For decades, I'd built an empire on efforting. 

I was a classic overachiever.

An over-doer.

A pusher of boundaries.

I loved the idea that I was...

This morning I was reviewing a list of all the recovery programs out there, and I noticed that most of them share a similar kind of name. Almost all of the titles focus on recovery, healing, reorientation or reprogramming. 

And then we have my program, The Edison Effect which doesn't seem to on ...

It read: In my last coaching cohort, I received a question that felt important enough to warrant its own newsletter. 

“How did you maintain belief in the recovery path you now teach, despite setbacks — especially when conventional medicine frames ME/CFS as irreversible damage rather than primary...

Last week, here in my blog, I did my best to illuminate the narrative around the confusion between trigger and cause. Hopefully by now you understand that while there is no one clear trigger of ME/CFS — there IS a clear cause of MECFS. (If you missed that post you can find it here: Why There is No O...

 So, there I was.. lying in bed in the dark in the middle of the day. It was the spring of 2021, though the seasons meant very little to me during that time. I was ankle deep in a FB group, struggling to look at the screen, when I came across the word pacing for the first time. 

I’d been undiagnose...

I've been working a lot this past month on Pillar 3 of recovery (supporting the body), focusing on things like nutrition, sleep, movement, and hormonal balance.

And by the way — yes, my recovery is an ongoing process of maintenance. The same tools I used to get well across the four pillars, are the...

 If you've been in the recovery space, and have had the capacity to pay attention, then you've probably noticed that recovery falls into "camps,” where groups or people sort of pedal an approach as the solution to MECFS.

These camps fall into:

1. Pacing Programs: (The main idea is that pacing is h...

If you have MECFS, you've probably heard of PEM — post-exertional malaise. PEM is the hallmark feature of ME/CFS, and one of the clearest ways clinicians distinguish it from other illnesses. PEM, as it is defined in ME/CFS, does not occur in other conditions in the same way.

However, the term post-...

When we speak about recovery; it often feels like a big plate of spaghetti placed before us; all mangled and tangled up in a pile, with confusing approaches to getting well, that at times even seem contradictory. Yet, in this amazing technological age, we SEE people getting well, so we know it's pos...

Today I was in the hospital in Bali, with an infection that started minimally a week ago and has now spread. The last few days I have been in a remote part of the island, trying to find good care. It has been challenging, and I have had little choice in how I had to push my body past fatigue to trav...

Is recovery really all just about Brain Retraining? 

Well....Yes, And NO.

I’m seeing a lot of buzz lately in MECFS circles around brain-retraining, and unfortunately, I'm also seeing an over-simplification of the recovery process.

I feel that brain-retraining programs get MECFS mostly right, but ...