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What PEM Really Is (It’s Not Just Fatigue)
Dec 15, 2025
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If you have MECFS, you've probably heard of PEM — post-exertional malaise. PEM is the hallmark feature of ME/CFS, and one of the clearest ways clinicians distinguish it from other illnesses. PEM, as it is defined in ME/CFS, does not occur in other conditions in the same way.
However, the term post-...
How to Answer When Someone Asks "How Are You?"
Nov 14, 2024
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The 
Welp. This made me laugh... a lot.
Hey, LISTEN, beautiful souls. It certainly can be a challenge to know how to respond to this question, especially because I find that we tend to say "how are you?" to people without REALLY wanting to know how they ACTUALLY are. It's more at least in the USA,
...Welp. This made me laugh... a lot. Hey, LISTEN, beautiful souls. It certainly can be a challenge to know how to respond to this question, especially because I find that we tend to say "how are you?" to people without REALLY wanting to know how they ACTUALLY are. It's more at least in the USA,
Regulating Tools: Lifelines For MECFS & Beyond
Aug 10, 2024
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Today I was in the hospital in Bali, with an infection that started minimally a week ago and has now spread. The last few days I have been in a remote part of the island, trying to find good care. It has been challenging, and I have had little choice in how I had to push my body past fatigue to trav...
